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Youth and Transition Resource Guide



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General/Comprehensive Resources

See also our FAQ Page for general information about deafblindness.

What

is Transition for the Individual who is DeafBlind?

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A concise Q and A, including

the meaning of transition, basic guidelines and recommendations for

the transition process, and who is part of the transition team.

Was

There Life Before Transition?

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A brief description of the history

and meaning of "transition" in special education.

Self-Determination

for Children and Young Adults Who Are Deaf-Blind

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"Self-determination is &;the

ability of individuals to make the choices that allow them to exercise

control over their own lives, to achieve goals to which they aspire

and to acquire the skills and resources necessary to participate fully

and meaningfully in society.&;"

Enhancing

the Self-Determination of Youth and Young Adults Who are DeafBlind

E-mail Brian Abery:

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Seeks to "Enhance understanding

of the multiple factors that contribute to the self-determination of

these students; Increase knowledge of the environmental factors that

have the potential to facilitate or serve as barriers to their enhanced

self-determination; Develop and field-test a multi-component education

and support program to facilitate such children and youth taking an

age and capacity appropriate degree of personal control over their lives;

and Disseminate this information to educators, families, and persons

who are deafblind at a local, state, and national level. Funded by the

US Department of Education, Office of Special Education and Rehabilitative

Services (OSERS).

The

Choices for Young Adults Born DeafBlind

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focus on Great Britain, but can

be helpful to those in other countries

Sense

Publications List

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A list of factsheets and articles

related to DeafBlindness.

Youthwork

Links and Ideas &; Deaf and DeafBlind Adolescents

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Articles and links about topics ranging from exploring

your identity and culture, to education and transition.

Deaf and Hard of Hearing Services Division &; Services and Resources

for Consumers

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"Whether you are culturally

deaf, oral deaf, late deafened, hard of hearing, deafblind, or a friend,

coworker, or family member of a person with hearing loss, you&;ve

come to the right place. Here you can find information about services

designed to meet your needs. Learn about assistive technology, sign

language interpreters, your legal rights, and more."

Transition

PACER&;Center

National

Transition Follow-Up Study of Youth Identified as Deafblind: Parent

Perspectives

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"the first research initiative

to thoroughly explore the post-school life of youth who are deaf-blind&;

regarding communication, sensory status, mobility, health, and problem

behaviors, &;secondary school experiences, especially regarding services

and supports, work experience, and transition planning&; "

National

Center on Secondary Education and Transition

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"Headquartered at the Institute

on Community Integration, University of , the NCSET provides

technical assistance and disseminates information focused on four major

areas of national significance for youth with disabilities and their

families:

Providing students with disabilities with improved access and

success in the secondary education curriculum.

Ensuring that students achieve positive postschool results in

accessing postsecondary education, meaningful employment, independent

living and participation in all aspects of community life.

Supporting student and family participation in educational and

postschool decision making and planning.

Improving collaboration and system linkages at all levels through

the development of broad-based partnerships and networks at the

national, state, and local levels."

TransCen,

Inc.

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"The associates at TransCen,

Inc. have developed, implemented, and researched numerous innovations

regarding school-to-adult life transition and career development for

people with disabilities."

Tips

for Career Exploration

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How to prepare a self-analysis

profile sheet in order to consider what you have to offer a prospective

employer. From AFB CareerConect: "employment planning for people

who are blind or visually impaired."

Transition

Planning for Adolescents with Special Health Care Needs and Disabilities:

Information for Families and Teens

&;Visit website&;:http://www.communityinclusion.org/transition/familyguide.html

"The booklet covers four major areas of adulthood:

health, education, employment and recreation." Available online

as a PDF file.

Disabled Student Services at Public Colleges and Universities

MnSCU

Disability Services &; State Colleges and Universities

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Contact: Steve Frantz, System Director

for Student Affairs, 651-296-0672 or

Disability

Services at University of &; Crookston

Access

Center at University of &; Duluth

Disability

Services at University of &; Twin Cities

See also Websites

on Disability Issues/Topics from the University of &; Crookston.

Disability Rights

See also Disability Rights Laws on our Tools for Independence page.

IDEA/ADA

in Plain Language

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Annotated links to resources

that explain legal rights, especially in educational settings, for people

with disabilities.

Guide to Disability Rights Laws

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Includes brief summaries and

contacts for further information or to file a claim.

ADA

Home Page

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"Information and technical

assistance on the Americans with Disabilities Act (ADA)" from the

U.S. Department of Justice.

Support and Advocacy

State Academy for the Blind&;(MSAB)

State Academy for the Deaf&;(MSAD)

DBTeens

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"A Private Deaf-Blind Discussion

List for Teenagers and Young Adults. The purpose of this list is to

share information, inquiries, ideas and opinions about deaf-blindness

and other issues. This is a private list for teenagers and young adults."

To subscribe: e-mail , the list owner.

DeafBlind

Pen Pals Directory &; from Sense

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"If you&;re feeling isolated

or just [want to get] to know someone, our penpals section will help.

You can search for people and then contact them electronically for a

chat."

Zigawhat

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"a Web site for learning,

connecting, growing, coping, and fun for young people with disabilities

and their peers. Zigawhat is maintained by the folks at NICHCY.

Disability Central &; (Active Teen)

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"a dynamic site managed

by and for teens with disabilities. With start-up funding from the U.S.

Department of Education we have created a cyber hang-out for teens with

disabilities, their siblings and their friends." Note: This page

seems to be no longer active. However, the main

Disability Central site still includes a lot of useful information.

Department of Human Rights

E-mail:

&;Visit website&;:http://www.humanrights.state.mn.us/

"a neutral state agency

that investigates charges of illegal discrimination." Web site

includes Information about your rights in employment, housing, and other

settings, and a very extensive listing of related resources.

Disability Law Center &; Client Assistance Project

free civil legal assistance to

individuals with disabilities. Client Assistance Project advocates and

mediates for people who have grievances about services from state agencies.

Continuing

Care &; Department of Human Services: People with Disabilities

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" A primary goal of Continuing

Care is to promote independent living for people with disabilities by

funding or providing a broad range of residential care and social services

close to home communities instead of in institutionalized settings."

For more information on services in your county, see County

Human Services Agencies.

Chemical

Health Division

Program

for Infants and Toddlers with Disabilities

HIV/AIDS

Programs

Mental

Health Division

Communication and Technology

Telephone Equipment Distribution (TED) Program

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Interpreter Referral Web Site

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"information about sign

language interpreters, how to use them and how to find them&; created

to help ensure that all ns are able to locate needed sign language

interpreter services"

101

Ways to Use Braille

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Easy, low-tech ways to use braille

in your daily life, even if you only know the basic braille alphabet.

Assistive

Technology

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Information about technology

for people who are deaf, hard of hearing, deafblind, or have a speech

or mobility impairment. Includes assistive listening devices, special

telephone technology, relay service, and the telephone equipment distribution

program. From the Department of Human Services.

Assistive

Equipment and Technology Fact Sheet

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Definitions and examples of several

types of technologies used by people who are deaf, deafblind, or hard-of-hearing.

Includes alerting devices, telecommunication devices, assistive listening

devices, and captioning. Available online in PDF

format, or in other forms for people with disabilities by calling

(651) 296-3980 Voice, or (651) 297-1506 TTY.

Effective Interaction: Communicating With and About People with Disabilities in the Workplace

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Clear advice about how to interact

with a person who has a visual, hearing, mobility, or cognitive disability.

Recreation

Camp Information for Youth and Adults Who have Vision and Hearing Loss

a state-by-state list of of camps/retreats for DeafBlind people nationally. From the Helen Keller National Center.

Recreation and Leisure Fact Sheet

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"practical information on how to get people who are deaf-blind with cognitive disabilities involved with recreational activities. The focus is on recreational activities for pre-adolescent children through adult." Includes steps required to develop a recreational plan, examples of recreation activities with different people who are deaf-blind, extensive resource list. From DB-LINK.

E-mail Sally Prouty:

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Services for Children and Youth: Advocacy/Support, Training of Families, Info and Referral, Training of Professionals, Serve deafblind children with additional disabilities. Children Linking Families program provides "family workshops, an annual family weekend, support groups and electronic networking of families throughout ."

Notes: Also serves deafblind children/youth who have cognitive and/or physical disabilities; statewide services.

Financial Assistance

&;s

Healthcare Programs

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Description of MA, GAMC and Care:

services covered under each plan, eligibility requirements, and how

to apply.

Medical

Assistance (MA) &; &;s Medicaid Program

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"a joint federally/state-funded

[health care] program which provides necessary medical services

for low-income families, children, pregnant women, and people who

are elderly (65 or older) or have disabilities." Eligibility

requirements, covered services, how to apply.

MA

Waivers: Home Care/Home and Community Based Services (HC/HCBS)

Waivers

General

Assistance Medical Care (GAMC)

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"pays for medical care

for some 23,300 low-income ns who don&;t qualify for Medicaid

or other state or federal health care programs."

Care

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"a subsidized health

care program for people who live in and do not have access

to health insurance. There are no health condition barriers, but

applicants must meet income and program guidelines to qualify."

Disability Health Options (MnDHO)

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"a program for people

with physical disabilities who are eligible for Medical Assistance

(MA). People who are eligible for both MA and Medicare may also

enroll&; Every enrollee is assigned a care coordinator who answers

questions, helps with paperwork, and helps arrange services."

Economic

and Community Supports

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"The Department

of Human Services supervises a variety of economic assistance programs&; Most economic assistance (including welfare) programs are administered

at local county agencies."

Child

Support Enforcement Division

Deaf

and Hard of Hearing Services Division

Food

Stamp Program

Food

Stamp Employment and Training (FSET)

General

Assistance

Family Investment Program (MFIP)

Food Assistance Program (MFAP)

Supplemental Aid

Refugee

Assistance Program

Self-Employment

Investment Development Program (SEID)

Telephone

Equipment Distribution (TED) Program

Telephone

Assistance Program (TAP)

State

Services for the Blind (SSB)

Department of Economic Security

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Regional Offices in MN: Bemidji, Brainerd,

Duluth, Hibbing, Mankato, Marshall, Moorhead, Rochester, St. Cloud,

St. Paul.

Services for Adults and Children: Equipment,

information and referral, library and transcription services, Radio

Talking Book Network, self-care assistance for seniors, transition-age

services, vocational training and referral.

Benefits

CheckUp

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"&;helps thousands of

people every day to find programs for seniors [and people of all ages

with disabilities] that may pay for some of their costs of prescription

drugs, health care, utilities, and other essential items or services.

Please fill out our simple questionnaire to find programs that can assist

you or your loved ones.&; Also available in

Spanish for residents of Colorado.

Directory

of Funding Resources for Assistive Technology in

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"information about

and national agencies and organizations that fund technology, in a format

that lets you compare programs and tells you how to get in touch with

people who can help." From &;s STAR Program.

Post-Secondary

Financial Aid

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advice and resources for people

with disabilities seeking funding for college or vocational school.

HEATH

Resource Center

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National Clearinghouse on Postsecondary

Education for Individuals with Disabilities. Free publications about

education, selecting a college, assistive technology, scholarships,

and financial aid. Comprehensive and very informative.

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