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National Resources in the USA

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• American Association of the DeafBlind (AADB)
  814 Thayer Avenue, Suite 302
  Silver Spring, MD 20910-4500
  1-800-735-2258 Voice
  (301) 588-6545 TTY
  (301) 588-8705 Fax
  Email: info@aadb.org
  Internet: http://www.aadb.org/
  Description: "a national consumer advocacy organization for people who have combined hearing and vision impairments. AADB is open to all persons who are deaf-blind and individuals directly concerned with their well being, including spouses, children, friends, and health care professionals. Seeks to encourage independent living for individuals who are deaf-blind. Provides technical assistance to persons who are deaf-blind, families, educators, and service providers."
  Services: Training of Consumers, Info and Referral, Social/Recreational.
• DB-LINK - The National Information Clearinghouse on Children who are Deaf-Blind
  345 N. Monmouth Avenue
  Monmouth, OR 97361
  1-800-438-9376 Voice
  1-800-854-7013 TTY
  (503) 838-8150 Fax
  Email: dblink@tr.wou.edu
  Internet: http://www.tr.wou.edu/dblink
  Services for Children: Info and Referral, Serve DeafBlind people with additional disabilities.
  • DB-LINK State Resource Fact Sheets
    Internet: http://www.tr.wou.edu/dblink/data/statefac.htm
  • DeafBlind Perspectives
    contact Randy Klumph
    (503) 838-8885 Voice
    (503) 838-8821 TTY
    (503) 838-8150 Fax
    E-mail: dbp@wou.edu
    Internet: http://www.tr.wou.edu/tr/dbp/current.htm
    Description: "a free publication, published three times a year by the Teaching Research Division of Western Oregon University… DB-LINK and NTAC contribute staff and resources for content, editing, and publication." An excellent, informative publication.
• Hadley School for the Blind
  700 Elm Street
  Winnetka, IL 60093-2554 USA
  Toll-Free: 1-800-323-4238 Voice
  (847) 446-0855 Fax
  E-mail: Info@Hadley-School.org
  Internet: http://www.hadley-school.org
  Description: "Hadley has a course for you if you are a blind adult (14+ years of age), a parent or grandparent of a blind child, a family member of an adult who is blind, or a (para)professional in the blindness field. The Hadley School for the Blind offers more than 90 distance education courses to eligible students completely free of charge." Current course listing is on the Hadley web site, and is also available by mail in alternate formats. Designed to focus blind and visually impaired people, but many of the courses can be helpful to DeafBlind people and their friends, families, and professionals.
• Helen Keller National Center for DeafBlind Youth and Adults (HKNC)
  111 Middle Neck Road
  Sands Point, NY 11050-1299
  (516) 944-8900 Voice
  (516) 944-8637 TTY
  (516) 944-7302 Fax
  Email: HKNCINFO@rcn.com
  Internet: http://www.hknc.org/
  Services for Adults: Advocacy/Support, Functional Assessments, Independent Living Training, Orientation & Mobility, Training of Consumers, Support Service Providers (SSPs), Info and Referral, Social/Recreational, Training of Professionals.
  • HKNC North Regional Office
    484 - 42nd Avenue, Suite 4
    East Moline, IL 61244-4040
    (309) 755-0067 Voice
    (309) 755-0018 TTY
    (309) 755-0025 Fax
    Email: hknc5ljt@aol.com
    Services for Adults: Info and Referral. North Regional Office serves Illinois, Michigan, Indiana, Minnesota, Ohio, Wisconsin.
• Katlyn's Hope
  303 South Elm Street
  Wellington, KS 67152
  (316) 326-6118 Voice
  Toll-Free: 1-877-677-4673 Voice
  Email: khope@idir.net
  Internet: http://www.idir.net/~khope
  Services: Training of Consumers, Financial Assistance, Serve DeafBlind people with additional disabilities.
• National Family Association for Deaf-Blind
  111 Middle Neck Road
  Sands Point, NY 11050
  1-800-255-0411, ext. 275 Voice
  (516) 944-8751 Fax
  Email: NFADB@aol.com
  Internet: http://www.nfadb.org
  Description: "a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf-blindness."
  Services for Children: Training of Families, Info and Referral, Social/Recreational.
• National Federation of the Blind - Deaf-Blind Division
  Joseph B. Naulty, President
  11943 Suellen Circle
  West Palm Beach, Florida 33414-6277
  (561) 753-4700
  Email: jbn.naulty@worldnet.att.net
  Internet: http://www.nfb-db.org
  Description: "Deaf-blind persons working nationally to improve services, training, and independence for the deaf-blind. We offer personal contact with other deaf-blind individuals knowledgeable in advocacy, education, employment, technology, discrimination, and other issues surrounding deaf-blindness."
  Services: To join mailing list, send an email to sub.nfb-db@nfbnet.org.
• NTAC - National Technical Assistance Consortium for Children and Young Adults who are DeafBlind
  (503) 38-8391 Voice
  (503) 838-8221 TTY
  (503) 838-8150 Fax
  Email: ntac@wou.edu
  Internet: http://www.tr.wou.edu/ntac
  Services for Children and Young Adults: Advocacy/Support, Training of Consumers, Info and Referral, Social/Recreational.
• Perkins School for the Blind
  175 North Beacon Street
  Watertown, MA 02712
  Internet: http://www.perkins.org
  General Email: Info@perkins.org
  (617) 924-3434 Voice - Main Switchboard
  (617) 926-2027 Fax
  Services for Children: Advocacy/Support, Functional Assessments, Intervenors for Children, Orientation & Mobility, Training of Families, Info and Referral, Social/Recreational.
  
  Programs hosted at Perkins School for the Blind:
  • DeafBlind Program (ages 3 to 22)
    (617) 972-7228 Voice
    (617) 923-8076 Fax
    Email: Deafblind@Perkins.org
    Internet: http://www.perkins.org/subsection.php?id=10
    Description: "comprehensive education services in a variety of enrollment options to day students and residential students ages three to 22 who are deafblind, or multihandicapped. The primary emphasis of the Deafblind Program is the development of total communication, which may include the use of sign and spoken language, written language, braille, pictures, objects, gestures and/or alternative or augmentative communication systems. As a student progresses, his/her classroom curriculum changes to accommodate his/her age and skill level."
    Services for Children: Advocacy/Support, Functional Assessments, Intervenors for Children, Orientation & Mobility, Training for Families, Info and Referral, Social/Recreational.
  • Hilton/Perkins Program - Domestic Services
    (617) 923-8076 Fax
    Email: HiltonPerkins@Perkins.org
    Internet: http://www.perkins.org/section.php?id=107
    Description: "designed to help Parents, Teachers and other organizations and professionals learn how better to provide for children who are multihandicapped blind or deafblind. Hilton/Perkins staff members have expertise to address the needs of infants, school-aged children and young adults transitioning from school programs. The Hilton/Perkins Program gathers data and develops curriculum, literature and materials for dissemination to parents and professionals nationally and internationally."
    Services for Adults and Children: Advocacy/Support, Financial Assistance, Serve DeafBlind people with additional disabilities.
  • National Coalition on DeafBlindness (NCDB)
    (617) 972-7347 Voice
    (617) 923-8076 Fax
    Email: Steven.Davies@Perkins.org
    Description: "committed to the continuation of services and to advocate for on-going federal responsibility for individuals with deaf-blindness… [The coalition] includes [leaders from] , American Association of the DeafBlind (AADB), Association for the Education and Rehabilitation of the Blind and Visually Impaired, Council for Exceptional Children - Division for the Visually Impaired, Council on Education of the Deaf, Council on Schools for the Blind, National Association for Parents of the Visually Impaired, Helen Keller National Center, St. Joseph's School for the Blind, Teaching Research and Perkins School for the Blind… The current membership is comprised of deaf-blind consumers, family members, professionals in the field of education and rehabilitation, and other concerned citizens."
    Services for Adults and Children: Advocacy/Support.
• About Deaf-Blind
  Internet: http://www.drc-fredericksburg.org/progressctr/deaf_deafblind.html
  Description: An informative article from the disAbility Resource Center. Topics include: Who is a Deaf-Blind Person?, Family Issues, Modes of Deaf-Blind Communication, Special Considerations in Communicating with Deaf-Blind People, Other Sources of Information.

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