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DeafBlind people are rarely totally deaf and
totally blind. Each individual's degree of hearing and vision
loss is unique.
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DeafBlindness Web Resource
Description: Maintained by deafblind Brit,
James Gallagher, this text-only site provides links to a wealth of information
on DeafBlindness and related topics from around the world, including
terminology, internet resources, conferences and courses, journals and
periodicals, videos, service providers, bibliographies, equipment, communication,
internet access, accessible email services, and accessible computer
programming resources. See also "A-Z to Deafblindness," which
may have slightly more updated information.
Description: "My name is James Gallagher
and I am deafblind myself. This site is here to try and offer some help
to Blind or deaf people, and especially deafblind people, and those
who provide specialised services for those who are deafblind. A-Z to
Deafblindness is also here, to make people more aware about deafblindness."
Includes archives of info about deafblindness, and extensive resource
lists of DeafBlind-related conferences, courses, mailing lists, newsletters,
equipment, organizations, poetry, and videos for and about DeafBlind
people from around the world.
for DeafBlind People Throughout the World
Description: An extensive list, organized
Description: "As deafblindness is a low
incidence disability the extent of activity in any one country will
not be enough to maintain a distinct identity for this field. International
networking and the sharing of information is essential to the development
of the deafblind field and quality services for deafblind people. To
learn from good practice we need to collaborate across national boundaries."
members/contacts - lists contact information for Honorary Officers,
Management Committee, Corporate Members, and information networks
around the world.
Description: "Hilton/Perkins staff provide
the training, consultation and technical expertise to enable educators,
local communities, schools, and family members to develop, establish
and expand their own programs for [multihandicapped blind or deafblind]
children in need, [especially Africa, Asia, the Caribbean, Eastern Europe
and Latin America]."
Children Home Page
Description: "...a resource for parents
of deafblind children. We face many challenges in our everyday lives
looking after and communicating with our deafblind children… a
place for parents to gain information, [and] talk with other parents
who face the same unique challenges."
Services: Listserv, Chat Room, Life Stories
of DeafBlind children and the adults who care for them.
11-13 Clifton Terrace
London N4 3SR
Description:The world's largest deafblind-focused organization.
"Sense is the national [and international] voluntary organisation
that works with and campaigns for the needs of children and adults who
are both deaf and blind; providing advice, support, information and
services for them, their families, carers and the professionals who
work with them. In addition we work with many of the thousands of people
who have a sight or hearing problem plus other disabilities."
Federation of the DeafBlind (WFDB)
WFDB can be reached through:
The Swedish Association of the Deafblind (FSDB)
SE-122 88 Enskede, Sweden
Newsletter: To obtain the newsletter on the
Internet from the server of the Swedish Deafblind Organisation FSDB,
send an e mail to email@example.com in the body of the e mail you have
to write subscribe intndb-l
Newsletter Sample: http://www.wfdb.org/newsletter/News_2000_april.htm
PO Box 1213
Camberwell Victoria Australia 3124
Telephone: Voice (03) 0427 435 243
Fax (03) 9486 2092 ( +61 39 486 2092)
Description: "Objectives are to encourage
self-organisation and self-determination by people who are deafblind,
to serve as a national assembly for meetings, ommunication and interchange,
to provide a forum for collective expression and discussion, to work
for improvement throughout Australia in education, health, welfare,
rehabilitation, employment and recreation for deafblind people, to cooperate
with kindred organisations such as the NFBCA and the Deafness Forum,
to disseminate information, to solicit support from government at various
levels for people with deafblindness."
DeafBlind and Rubella Association
350 Brant Avenue
(519) 754-5400 Fax
Description: "committed to assisting
all persons who are deafblind to achieve with Intervention the best
quality of life."
Helen Keller Center
Canadian Helen Keller Centre
210 Empress Avenue
(416) 225-4871 Fax
Description: "the first skills training
centre in Canada where individuals who are Deaf-Blind can upgrade or
gain independent living and technical skills."
National Society of the DeafBlind
405-422 Willowdale Ave.
North York, Ontario
Description: "advocate for new and improved
services… promote public awareness of issues affecting persons
who are Deaf-Blind," and publish information about Intervenor services.
3/18 Erson Avenue
Royal Oak, Auckland
Email President Max Comer: firstname.lastname@example.org
Description: "DeafBlind New Zealand arose from the need
seen in the NZ Foundation for the Blind, for a separate Society run
by DeafBlind people themselves."
Description: "...offers comprehensive
services to deafblind people, their support assistants and other professionals.
These include training in communication and rehabilitation skills; a
free 24 hour helpline; a regional network of staff and volunteers; a
varied leisure programme and a range of publications in different reading
Appeal / National Centre for Deafblindness
Description: "Deafblind people have
decided that the best way to increase the range of services to meet
their unique needs and also to raise public awareness, is to create
a National Centre for Deafblindness. Special features of the centre,
which [was in 2002] built in Peterborough, will include a guidance
system to make it totally accessible to deafblind people, a publications
department, an information and research centre, and conference facilities."
Moray House Institute of Education
University of Edinburgh
Edinburgh EH8 8AQ
0131 651 6501 Voice
0131 651 6067 TextPhone
0131 651 6502 Fax
Description: "promotes and supports new developments and
effective practices in the education of children and young people with
sensory impairments, that is; visual impairment, deaf and deafblind.
SSC collaborates with: education authorities; schools and groups of
teachers; voluntary organisations; parents groups; young people themselves."
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